Involving People with lived experience in your work (Part 2)
In our last post we talked about the importance and value of involving people with lived experience in your work, which aims to break down structural inequalities, challenge existing power dynamics, empower communities and amplify diverse perspectives.
We also found that several funders want to see projects that promote social justice, fairness and tackling inequality and projects that involve people who use services to shape the services they use. This was seen by funders who have signed up to the Diversity, Equity and Inclusion (DEI) standard to understand how their funding supports groups experiencing structural inequity and in the National Lottery Community Fund, which emphasises support for projects where people shape decisions and the future of their communities they live in.
In this week’s post we want to move from the why to the how to involve people with lived experience in your work. We looked at Mind’s Influence and Participation Toolkit , which gives fantastic practical guidance in this area. Mind is a national charity which support peoples’ mental health.
Here’s our summary and findings from the “how” part of the toolkit of what to think about when planning to involve people with lived experience in your work and the types of methods you can use. The toolkit has so much useful information and many useful resources that it’s well worth a more in–depth read.
What to think about before starting
Why do this? What are the outcomes you would like to see as a result of participation, e.g. a new service design, a new project, to understand an issue in more depth or a job description for a new role? Think about the value of peoples lived experience and how it will influence your work.
Who do you need? Take an asset-based approach focussing on what people can do rather than what they can’t. Think about which people are best placed to participate in terms of their skills, lived experiences of the issue and practical things like availability. Have you got a diverse group of participants whose experiences about the same topic may vary across different groups and communities?
Communicating well. When you’ve decided on who you want to engage what’s the best form of communication (e.g. in person, letter, notice board, social media etc.)? Is it as accessible as possible? Avoid using jargon and keep it easy to understand and engaging, e.g. a picture can sometimes be worth a thousand words.
Manage expectations. Be clear on what people should expect from the experience, the purpose of participation, time commitment needed and what you can deliver based on what people tell you. Be honest to avoid disappointment and lack of engagement now and in the future.
Adhere to the principle of reciprocity. Think about ways participants can get something back for putting something in.
Most importantly, recognise that people with lived experience have skills, knowledge and experience to contribute equally with staff at all levels.
What method(s) should I use?
Which methods you end up using will depend on the time, budget and staff who have experience in engagement. Throughout the project cycle you may end up using a range of methods, which means you can offer a wider range of people more ways to participate and increase diverse perspectives in your work. Always think of ways of how to make your engagement as accessible as possible, which may mean using a variety of methods.
Remote influence and participation. This involves using platforms for hosting online meetings, such as Microsoft Teams and Zoom. These have great ways of capturing feedback and discussions by recording online sessions, using the chat, and voting functions. Think about how you could make this accessible though, as some people will not have access to the equipment needed.
Co-design involves people with relevant skills and experience (including professionals and people with lived experience) coming together to create things such as, training materials or new policies. Decision making is shared equally between everyone involved
Coproduction involves staff and people with lived experience having genuinely equal and reciprocal relationships when designing activities, projects or services. This method challenges existing power dynamics with users of an organisation having as much influence as staff in designing and improving projects and services for those who use them. Coproduction is based on the principles of accessibility, diversity, equality and reciprocity (getting something back for putting something in).
Be creative. When thinking about accessibility in participation not everyone is enthusiastic by traditional meeting settings (that includes staff!). Think about different venues outside of the office, use art, storytelling and ideas trees to make participation as engaging and accessible as possible. Think about using more organic methods of engagement like world cafés or open space where people participating create and manage agendas giving ownership to the people involved.
Digital technology and social media can be used as a quick and convenient way to reach lots of people, whether that be through social media or large-scale emails using Mailchimp. This can be a useful space to test ideas, topics or themes to follow up with more in-depth engagement and provides an anonymous safe space for people to contribute.
More traditional ways of engagement can be:
- Discussion/Focus Groups – a small group of people feeding back on a specific topic.
- Interviews – more in-depth engagement with people for case studies.
- Questionnaires/Surveys – useful way of collecting data both quantitative and qualitative, which can be enhanced by including people with lived experience in their development.
- Steering groups – members of staff and people with lived experience influencing strategic decisions.
As you can see there are so many ways to involve people with lived experience in your work, and these are just some examples of how you can do this. When choosing what method(s) to use always ask yourself how I can make this as accessible as possible to enable diversity of perspectives.
Our three featured funders of the week are
Tom ap Rhys Pryce Memorial Trust
Tom’s Trust funds charities, CIC’s and social enterprises of up to £5000 whose work contributes to making London a safer place by providing opportunities for disadvantaged young people (up to the age of 24) who might be at risk of falling into street crime or gang culture.
Please visit the website for more information.
Grocers’ Company
Provides grants to UK registered charities with a turnover of £500k plus under the themes of
- Relief of poverty
- Children and young people
- Elderly
- Disability and Inclusion
- Health
- Military
- The arts
- Heritage
- Environment and Conservation
Please visit the website for more information.
Hedley Foundation
Provides grants to UK registered charities with an income below £m of up to £5000 for project costs under the following themes
- Youth Support
- Disabled Support
- Supporting the elderly and terminally ill
- Miscellaneous Support (other social welfare projects)
Please visit the website for more information.
Whilst we make every effort to ensure the information is correct, we advise you to check details on funders websites yourself
What method(s) have you used to involve people with lived experience in your work? Are there any that you have used which are not included here? What are your top tips for working with people with lived experience? Please let us know what you think and if you have any comments about this post by completing the short survey below.
This is our final week in this series of blog posts. Thanks so much for reading! We hope you found this series helpful in keeping you updated with the latest charity news and in supporting your fundraising efforts in the current climate.
If you missed last week’s Fundraising News please click here to view
